Question 1

What is the PMDD Policy Council?

Accepted Answer

The PMDD Policy Council is a bipartisan coalition of people with lived experience, parents, partners, clinicians, research scientists, public leaders, and advocates committed to catalyzing a national response to Premenstrual Dysphoric Disorder (PMDD) through policy that expands research, strengthens education, increases awareness, and improves lives.

Question 2

What is PMDD?

Accepted Answer

PMDD (Premenstrual Dysphoric Disorder) is a cyclical, hormone-based disorder affecting menstruating women and girls. It causes severe emotional, mental, and physical symptoms — including depression, anxiety, extreme fatigue, irritability, brain fog, and suicidal ideation — in the 7–14 days before a period starts (the luteal phase). It is classified under ICD-10 code N94.3.

Question 3

How can I take action on PMDD policy?

Accepted Answer

You can take action by contacting your U.S. Senators and Representatives to support PMDD research funding and provider education legislation, joining the coalition as an advocate, clinician, or researcher, sharing your personal story, or spreading awareness of the Council's work. Use the contact form at pmddcouncil.org/take-action to get started.

Question 4

How do I join the PMDD Policy Council coalition?

Accepted Answer

Anyone with lived experience, clinical expertise, research background, or policy knowledge is welcome to join. Fill out the contact form at pmddcouncil.org/take-action and select "Join the coalition" as your area of interest. A member of our team will follow up.

Question 5

What policy changes is the PMDD Policy Council advocating for?

Accepted Answer

The Council advocates across four pillars: (1) increased federal funding for PMDD research, including a dedicated NIH research initiative; (2) stronger medical education and clinical training for accurate PMDD diagnosis and treatment; (3) elevated public awareness of PMDD as a serious, biologically-based condition; and (4) policy outcomes that translate into measurable improvements in the lives of millions affected by PMDD in the United States.

Question 6

How can I support PMDD research funding?

Accepted Answer

You can support PMDD research funding by contacting your congressional representatives to urge support for PMDD-related legislation, joining the PMDD Policy Council coalition, and sharing awareness of the need for dedicated NIH funding for PMDD research. Visit pmddcouncil.org/take-action to connect with the Council.

Make Your Voice Heard

Four Ways to Take Action

Contact Your Representatives

Join the Coalition

Share Your Story

Spread Awareness

Contact the Council